Well for the moment Norah is officially tubeless. Norah took down a 50ml bottle this morning and was able to get her feeding tube pulled this afternoon. PRAISE GOD!!!! Now we just need to keep doing what we are doing and hopefully we can get home. Norah also had a follow up echo yesterday and everything with that came back well. The docs are really pleased with how well her repair went. The surgeon came around this morning and patted me on the shoulder saying "we are getting close." Since Norah is such a peanut she is set up to have a car seat evaluation on Monday to make sure she fits in the car seat and her sats do not drop. We also decreased her Lasix again today as well. We are so grateful to be at this point of just working on building up strength and stamina for eating. Hopefully she can keep up the good work! Thanks once again for all of the kinds words and prayers. Surely God has heard our prayers.
God bless,
Luke and Amanda
http://www.youtube.com/watch?v=du0il6d-DAk
Norah's no tube hat!
Great!! By the way, beautiful praise and worship song you shared with the update.
ReplyDeleteI have to say it again: AWESOME!!! God is shining through, big time! And Grandma gets to feed little Norah. You must all be so excited and thrilled. To God be the glory!!
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