HI All,

Sorry I didn't get to update the blog yesterday we had a pretty big day. Norah decided to give her dear old mom a break yesterday and decided to cooperate. Her chest X-ray looked good in the morning and she tolerated being weaned on the ventilator so Ms. Norah was able to get her breathing tube out yesterday afternoon! She did beautifully yesterday afternoon and ok through the night. Her respiratory rate picked up a little bit today and she developed a moderate plural effusion on one of her lungs. We are going to continue to monitor her closely and continue the diuretics and hopefully resolve with out any further intervention. But because of that we have to hold off and starting any type of bottle feeding. We are continuing the feedings through the tube down her nose. We tried a pacifier and so far wanted nothing to do with it. She has pretty much lost of suck swallow reflex so it sounds like an occupational therapist will be coming by tomorrow to start working on getting that back.

Lilly and Claire are doing alright. They miss me terribly and it makes this all the worst. I have no idea whether to go home or stay here. I have been home a few time and they did come down yesterday for a long visit and had fun meeting Norah and playing with the toys. Now we are just praying to maintain the progress we have made and hopefully move forward tomorrow.